Archive for November 5th, 2015

Remission and beyond

After another year, two maintenance cycles later, I was declared to be in remission. Lymphoma is one the the cancers that are currently considered incurable. That makes the number of “R” treatments 8 (initial 6, and extended 2, of the treatment cycles every three weeks) plus 16 (four maintenance cycles of weekly treatments for four weeks each) = 24. 24 infusions of Rituximab, not counting the other drugs in the first eight regular treatments, each costing about $6000. That’s $144,00. for just one drug! Add CT and PET scans, hospital stay, urologist office visits and procedures, oncologist office visits, labs and the other infusion drugs and procedures, and the original GP , surgeon and other consultations in the diagnosis. In a period of 2Ā½ years I “spent” a fortune. I’m sure this earned the insurance premiums. But neither should be this high.

 

Anyway, that was the end of January, 2012. Since then, including a few other illnesses and conditionsĀ  along the way, I’m now taking nine drugs (one in three doses) daily. By far most of these are an attempt to counter the side effects or conditions resulting from the chemo. They don’t entirely but I’d hate trying to do without.

 

I’m now nearing 4 years in remission. I get blood tests and oncologist visits every 6 months. My existence as a “cancer patient” has outlived the careers of some of my oncologists. I’m on my fourth not counting the director of the consulting practice partnership who was there for my initial hospital stay. I guess that’s a positive thing. Most of the support staff I’ve enjoyed seeing are still at the infusion center.

 

I had all but forgotten

I only remembered that I have this blog because my host provider forced an update on the WordPress application and sent me an e-mail. So since then I had begun to consider whether I wanted to return to blogging or abandon it. Obviously I’ve written too much already for this to be a good-bye post (well, maybe not with my long-windedness). But is isn’t.

I’ve been thinking of a number of things to log about. Should I put them here? Should they be in their own assigned category? Should I put everything in one post or make multiple posts in one day if I’m thinking of different things? I really don’t know much of what I’m doing here and there aren’t clear answers because people blog the way they think. Some people blog just like someone else because they like to copy (sheeple come to mind). Independent souls have unique blogs. Finally, some blogs like mine evolve because their authors are just learning. So now I’ve convinced myself that it doesn’t matter. Thank you.

More later. I have no idea how soon or later.